Outcomes from Data Dialogues
In 2019, Nesta and the Scottish Government embarked on a dialogue with Scottish citizens to understand their opinions and ideas for the use and sharing of health and care data, now and in the future, and to explore possible future uses that improve outcomes for everyone.
Working with partnership organisations to conduct dialogues with citizens, the goals of Data Dialogues were to better understand the views and ideas of people living in Scotland on how their health and social care data should be used.
Using a range of participatory futures methods, the programme explored possible ways health and social care data could be used in future to create greater benefits for everyone, and to test and evaluate innovative methods of engaging and involving the public in conversations about their data. A toolkit for participatory public engagement in digital health and care was produced by the University of Edinburgh.
The Data Dialogues summary report outlines the findings from the four participatory futures projects. The insights were synthesised and expressed as seven relationships that Scottish citizens have with health and social care data.
The data relationships include both the way that a person shares and benefits from data, as well as their attitudes, understanding and beliefs around data sharing.
Data dialogues interactive
Explore citizens' data relationships in more detail through our online portal
Nesta worked with four partnerships to conduct the dialogues with Scottish citizens. You can find out more about each partnership and their projects in their own project reports:
- My World, My Health delivered by Health and Social Care Alliance Scotland in partnership with the Digital Health & Care Innovation Centre
- Fictional Pharmacy delivered by The Liminal Space
- Scotland on Mars delivered by Shift in partnership with Dartington Service Design Lab
- Care Data Futures delivered by Lydia Nicholas